After losing their twin boys Max and Noah to the very rare twin-to-twin transfusion syndrome (TTTS) in 2015, Liz and Todd Daly realised just how many babies were lost preterm and how special a full-term baby really was.
“It was explained to us that twin-to-twin transfusion syndrome was a rare and serious condition that can occur in pregnancies where identical twins share a placenta,” Liz said.
“We were told that due to the condition not being that well understood, things could change very quickly within the term of the pregnancy.”
Halfway through the pregnancy, Liz underwent placental ablation surgery in a bid to save the twins.
This complicated surgery is only performed in WA on average 10 times a year and has varying rates of success.
Unfortunately, the surgery was not successful in this case and the twins passed away the following day.
Following their heart-breaking loss, the couple battled multiple rounds of IVF and a cervical cancer diagnosis for Liz, which put their family dreams on hold for a year during treatment and recovery.
Their determination and strength paid off in spades as the couple welcomed a beautiful and healthy baby boy into their lives on Boxing Day 2016.
“Preterm birth is something that can affect anyone and TTTS isn’t something we considered, even after we found out we were having twins,” Todd said.
“Raising awareness and funds to enable much-needed research is critical because at the end of the day all we ever want is a happy and healthy family.”
The Daly’s story is just one of many that makes what we do so worthwhile. We ask you to support this important work to allow more families to have stories with such a happy ending.
About Twin-to-twin transfusion syndrome
Twin-to-twin transfusion syndrome (TTTS) affects identical twins who share a common placenta that contains abnormal blood vessels which connect the umbilical cords and circulations of the twins.
The complication of twins receiving differing blood flows can mean one of the babies can receive too much blood, which can affect the heart, as it needs to work overtime to process it all, while the other twin does not receive enough, effectively starving growth and development. Since the 1980s there has been a 60 per cent increase in twins and a 400 per cent increase in triplets in Australia.